Thoughts, ideas, musings, tips,
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The diagnosis odyssey It took 15 months to get a diagnosis for our eldest son's condition. For over a year, we didn’t know what might be...

This post was first published on KCNQ2 Cure Alliance on 15 August 2022. It takes so much more energy When you love and live with someone...

This post was first published on KCNQ2 Cure Alliance on 5 March 2022 When tragedy strikes and your world is turned upside down, how do...