Welcome to All the Letters!
I have always loved writing. I write to make sense of the world around me, process my emotions, to share with others, but mostly, I write to remember. One of my strongest beliefs is that sharing your own journey can really make a difference and help foster awareness and inclusion.
Welcoming a child with special needs
“I always thought that when life gives you lemon, you make lemonade. That was before my eldest son was born.”
I have a curious mind, love to learn new things, and am a pretty positive and enthusiastic person. I always thought that when life gives you lemon, you make lemonade. That was before my eldest son was born. He was born with a very rare form of genetic epilepsy - caused by a de-novo mutation on his KCNQ2 gene. Eliott is a gorgeous little boy who loves new adventures, being outside, baking cakes, reading books and listening to music, but he also struggles a lot with communication, concentration, and sensory issues.
Writing a book
When we started our parenting journey, we felt so lost (still do most of the time). Around the time of his first birthday, I looked for support and comfort in books. I wandered local bookstores to find testimonials of fellow parents who may have shared their journey. I hope that someone else had felt my pain and could help take it away. There was nothing.
I dreamt of a book called The Letter E.
I wanted to share our journey. I wanted other parents to feel less alone and isolated. I thought that if it could reach one other mum, sitting alone by her newborn bed in a hospital room, that would be worth it.
“I want to normalise what it means to have a different journey and a different perspective”
I also want to share tips that might work for us, inspire others to celebrate the small wins, and normalise what it means to have a different journey and a different perspective.
In our house, the highs are high, and the lows are low, and that’s ok. We’re constantly adapting, pivoting, and adjusting, and learning to live with that.
#TheLetterE #AllTheLetters #allthelettersofficial #livingwithspecialneeds #carer #parentingdifferently #alljourneysarebeautiful #GrowingandTransforming #NecessityToDesign #AlwaysLearning #AlwaysImproving #LookingUp #introduction #blog #epilepsy #KCNQ2 #KCNQ2Cure #KCNQ2Awareness #KCNQ2Strong #EpilepsyWarrior #SupportNetwork #specialneeds #KCNQ2Kids #childrenwithspecialneeds #specialneedsmum